You can name someone to make health-care decisions for you when you are no longer able to do so. This person is called a substitute decision-maker.
Why is this important to discuss now?
As the disease progresses, your substitute decision-maker will have to make decisions about your care. For most people, making decisions on behalf of another person is difficult. By talking to your decision-maker now about the level of care you wish in the future, you will make those choices easier for your caregiver. You will also have the comfort of knowing that your future care will be in good hands.
Even if you choose not to write things down or draw up a legal document, talk about these matters. Your verbal wishes can be just as valid. Let those closest to you know what you want and do not want for your future health and personal care.